Every morning I woke up with no clue what was in store for that day, all I knew is I had been awake most of the night and I knew I was too tired to do much that day.
It really has been rough. REALLY rough.
Prior to having Barclay, not getting at least 8 hours of sleep equalled a grouchy me, headaches,and pretty much an awful day. Fast forward 5 1/2 months and I have not gotten more than 2-3 hours sleep at a time since Barclay's birth. I think it's incredible that:
a.I'm still alive.
b.People still want to hang out with me.
c.I'm still alive.
I've been worn down, I haven't had the energy to exercise. I haven't had the energy to do anything except the bare minimum. That included feeding Barclay, doing my work, and sometimes a load of laundry, and of course my very needed therapy...blogging. All my days have run together, it is just one big blur. Nothing with Barclay is a blur, because I've made sure to remember and treasure every moment with him, good or bad, but everything outside Barclay is a blur. Everything else is hazy.
I just to give a quick run down of Barclay's health, because so many people have asked me:
-At 2 weeks old, figured out he and I had Thrush. Had to get on antibiotics.
-At 3 weeks, he was screaming so much for several hours at a time and was inconsolable. We took him to the night pediatrician and he told us,
"He has reflux, put him on previcid."
I was so tired and didn't really question him. I had no idea how many babies they "diagnose" with reflux, without trying to figure out if that is really it.
-Previcid helped a lot. But he was still crying quite a bit. So I got of milk for 2 months, I got off Gluten for 2 weeks. No change.
-His problems started getting worse around 3 months. I took Barclay in several times for his Pediatrician to only comment on his healthy weight and give me another way to take the previcid (take half at night, half in the morning, double the dose, etc.).
-I tried: ground up papaya tablets, Reliv, Probiotics, blackberry wine (just a little for him and a lot for me), natural stomach tablets, and some I can't even think of right now.
-He started getting so bad that he was up screaming half the night and nothing worked to calm him down. At 3 months, I started basically sleeping with Barclay in the guest room just to survive.
-I also noticed that he could only poop while standing up. Once a day. And it seemed painful.
I finally switched doctors to a very nice man who LISTENED to me. He told me he thought it might be a blocked bowl, or a narrowing of a part of the upper gi tract.
I finally felt validated.
-We were sent to Mission hospital where Barclay drank Barium and had xrays of his upper Gi which was very painful to watch.
RESULTS: He had no valve to control acid, and a possible hernia.
-Next test, they had to put him to sleep, put IV's in his head! and do an endoscopy.
RESULTS: Xray had been false, every thing looked good. He does have quite a bit of inflammation and acidic burning in the stomach
-Barclay had a bad rash for two weeks, we took him in because he was screaming and it was welting. They sent him in for an ultrasound of his kidneys and bladder.
-Next test, a 3 hour stomach emptying test.
Barclay drank my milk with some radioactive stuff in it (I know I'm cringing thinking of it)They did a scan of him 2 minutes after drinking, 1 hour after drinking, 2 hours after drinking, 3 hours after drinking.
-I felt totally stupid. All that money, all that pain, and nothing was wrong! Well something was wrong, but nothing they could find was wrong.
(I think back and wonder if I should have tried more natural stuff, I wondered if I was a bad mother for just letting the doctors take over. I was so tired and so hazy, I didn't have the energy to question or fight. But Barclay's pain was so evident and so constant, that as his mother, I felt it was my duty to search out all possibilites of severe problems. Because I would have felt awful if there was something truly dangerous wrong with him and I had dragged my feet.)
-I notice 3 weeks ago that Barclay was pulling at his ear, I took him in for an ear infection and he said he had no infection. Barlcay still had a terrible rash.
-I pulled him off of Prevacid myself, he was screaming but it was a different kind of screaming than usual.
-I took him on Friday to the Ped because his ear was swollen red, scaly, he still had a rash and several other places that were starting to grow, peel, bleed. He was also bleeding out of his ear.
RESULTS: Infantigo. Severe middle ear infection, and rash.
Treatment: 5 different creams and medicines.
I also start feeding Barclay Kefir with rice cereal mixed in, along with other veggies.
1 day later, I start seeing a difference. Big time.
He also for the first time in about 3 months was able to poop laying down (this i think was the Kefir).
RESULTS: Naps. No screaming at night. Happy happy baby. Happy happy mama.
Last night was the first night in 2 months that I have slept the entire night with my husband. Barclay woke up 2 times but I was able to feed him and put him down and that was it. I then went back to my bed and slept with Noah.
Barclay woke up cooing at 7 instead of his usual screams.
Today I woke up in my own bed, NOT totally exhausted. Noah brought Barclay to me to nurse and we had a very sweet time with the three of us.
I then got up, drank tea while Barclay played, did some work...and I know that Barclay will nap for two hours from 10-12. Because he has done it the past 4 days.
There is a light at the end of the tunnel.
I am going to drop a feeding for Barclay if I can, because I know he can go without it. I'm pretty sure in the next week or so, Barclay will be able to sleep through the night because he isn't in pain any more.
I have felt very defensive of myself lately. People think that I am too soft, hold him too much, don't let him cry it out. Let me tell you, I've let him cry it out all the time. Sometimes for an hour, mostly because I couldn't get out of bed. But nothing worked.
Barclay was in pain. Either stomach, bowls, or ear. He was in pain.
He isn't anymore. I don't know what happened, except that God healed him and it was nothing I did right or the doctors did right. It was God's mercy to me as a very worn out Mama who was starting (just barely) to feel a little bit bitter.
I'm not saying it's going to be easy as pie from now on (although that would be nice:-) )
I'm just saying that this morning I woke up and felt like I maybe could make it. That maybe I could have a semi normal life, that maybe I had more energy than just the absolute basics.
And maybe I could have the 5 kids that I've been wanting...
Praise the Lord!
To my friends and family. I'm sorry I've been out of touch, moody, and haven't replied to phone calls, emails, facebook messages. I'm sorry I haven't sent out my thank you notes for many sweet gifts. I was in a haze. But I think I'm back.